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Projects of the Federation

EDUCATION

Advancing Parent-Professional Leadership in Education (A.P.P.L.E.): is a project funded by the Department of Elementary and Secondary Education (Mass Focus Academy CFDA #84.323A). The project, in collaboration with the Federation's Parent and Information Center (PTI), provides a collaborative training model for school districts to ensure the full and effective participation of parents in systemic efforts to improve educational outcomes for children with disabilities.

Parent Information Project (MA DESE): provides parents with technical assistance and an increased opportunity for input into educational policies and procedures at the state and local level.

Parent Training and Information Center: The Massachusetts Parent Training and Information Center under I.D.E.A. which provides free information, support, technical assistance and workshops to Massachusetts families of children with disabilities and the professionals who work with them. These services are available statewide in English, Spanish, Portuguese and Chinese.

Pathways for Parents: is a project funded through a private foundation in cooperation with the Massachusetts Department of Social Services (DSS). The project assists the Federation in building capacity to better support identified parents to become effective and knowledgeable decision makers on behalf of their children through training, information and referral to appropriate resources.

Mass PIRC: is the Massachusetts statewide Parent Information and Resource Center (PIRC) under NCLB. MASS PIRC provides workshops, individual assistance and technical assistance to families, schools, and community organizations on the importance of family involvement in education.

MASS Focus Academy /USDOE State Professional Development Grant: is a systems change project funded by the United States Department of Education in collaboration with the Massachusetts Department of Education. This project enhances the training and preparation for professionals and parents to better implement the special education law, Individuals with Disabilities Act (IDEA).

Transition Works/MRC: is a grant through the Massachusetts Rehabilitation Commission to develop Model Transitional Rehabilitation Services for Youth and Young Adults with Disabilities. This demonstration project serves students with disabilities in Boston, Worcester, and Springfield, and brings together state and community partners as well as local high schools to improve the post-school outcomes of students with significant disabilities in areas including: employment, post-secondary education, and independent living.

HEALTH & HUMAN SERVICES

Mother-to-Mother Helping Hand (DPH/DSS): The Federation for Children with Special Needs is partnered with MA DPH, MA DSS, Brandeis University and has developed a family-focused support program to address the needs of families with newborns exposed to illegal substances as one component of a broader model of service under CAPTA (Child Abuse Prevention and Treatment Act).

Familias Latinas Unidas por el Sindrome de Down: provides support to Latino families of children with Down syndrome. Members receive support and are able to network together to improve services for their children’s educational and special health care needs.

Family TIES (DPH): is a parent to parent support project funded by the state Department of Public Health to provide information, referrals, and parent to parent matching to families who have children with special health care needs or disabilities.

Flex Family Support Project/ Department of Public Health (DPH): provides flexible support and resources to families through the DPH Care Coordination system.

Massachusetts Family-to-Family Health Care Information and Education Center: is funded by Maternal Child Health and offers health care information and support to families of children with special needs, and others, as they negotiate various systems to enable their children to live in the community and become active participants in the decision making process.

Massachusetts Family Voices at the Federation: is the MA chapter of a national network of families and friends speaking on behalf of children with special health care needs. Building capacity for family partnerships with managed care organizations is a project to build the capacity of the Mass Family Voices network in supporting partnership activities between managed care organizations and parents around improved access to services and supports for families of children wih special health care needs.

MassCARE Project (DPH): provides support to women, children, adolescents and young adults infected/affected by HIV/AIDS through the Family Advisory Network and the Teen and Youth Advisory Network.