Connecting Families: Let’s talk about CVI

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Description

CVI (Cortical Visual Impairment) is the leading cause of childhood blindness. Based in the brain, it is misunderstood and underdiagnosed. We will explore current research and the lived experiences of people with CVI, why CVI is a big deal, examples of what access looks like, and takeaways from the CVI Now IEP Guide.

Presenter:  Rachel Bennett

Rachel Bennett, M.Ed is an Assistant Director at the CVI Center at Perkins where she leads CVINow.org and parent advocacy and support. As a parent to Henry, who has CVI and other disabilities, she intimately knows the struggles, fears, joys, and precious moments of hope that come with raising a child with complex needs. In 2020, Rachel completed UMass Boston’s CVI Certificate program. Before joining Perkins, Rachel was a middle school special educator and secondary instructional specialist in Maryland.