Tools for Health Care Transition


Got Transition?: Got Transition/Center for Health Care Transition is a cooperative agreement between the Maternal and Child Health Bureau and The National Alliance to Advance Adolescent Health. Our aim is to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families.

Adolescent Health Transition: includes resources about health care, education, employment, and independent living for adolescents with special health care needs who are transitioning to adult services. Information provided by the National Center for Education in Maternal and Child Health (NCEMCH) at Georgetown University.


National Center on Deaf-Blindness (NCDB): Transition planning for youth who are deaf-blind.

Transitioning Teens with Autism Spectrum Disorders:  The Autism Resource Center has an extensive listing of MA Adult Transition Resources.

Moving to Young Adult Life: A Legal Guide for Parents of Youth with Mental Health NeedsThe Parent Professional Advocacy League’s guide covers topics such as financial decisions, health care options, guardianship and transition from special education.

Healthcare Transition

Transition Resource Directory (PDF): Descriptions of federally-supported projects and centers that focus on youth transition.

The Guide to Adult Living (PDF): the Transition to Adult Living in Pennsylvania isn’t just for PA residents; the Transition Skills Inventory is a checklist (page 3) to help youth with special healthcare needs and their families’ prepare for transition to for independence. In English en Espanol.

Health Insurance and Public Benefits

Social Security Disability Benefits: Information and application for Supplemental Security Income (SSI) Benefits.

Going to Work: A Guide to Social Security Benefits and Employment for Young People with Disabilities (2011 Edition).

A TRABAJAR (PDF): Una guia del Seguro Social de beneficios y empleo para jovenes con incapacidades (Edicion 2011).

Health Insurance for YSHCN in transition (PDF): Health insurance options for youth and young adults in transition in Massachusetts.

Health Insurance for YSHCN in transition-espanol (PDF): Opciones de Seguro Medico para Adultos Jovenes con Discapacidades.

Post-Secondary Education

National Center on Secondary Education and Transition: Creating opportunities for youth with disabilities to achieve successful futures.

Going To College: Information about living college life with a disability.

Youth Employment

NCWD-Youth-National Collaborative on Workforce & Disability: Information about employment and youth with disabilities. Be sure to visit the 411 on Disability Disclosure: A Workbook for Youth with Disabilities to learn the whens, hows and how much of disability disclosure.

Job Accommodation Network: Federal laws that protect rights of individuals with disabilities in the workplace, disability-specific work-related accommodations, resources, publications and more.

Youth Leadership

Kids As Self-Advocates (KASA): KASA is a national, grassroots project created by youth and young adults with disabilities for youth and young adults with disabilities. They know youth and young adults can make choices and advocate for themselves if they have the information and support they need.

National Consortium on Leadership & Disability for Youth: Research and training curricula about youth development and leadership, resources and more.